Still Aware is invested in sharing stillbirth research and actively lobbies for stillbirth to be listed and remain on the policy agenda at a national level.
Women’s & Children’s Hospital
Paediatric and Reproductive Genetics Unit and Department of Genetics and Molecular Pathology/SA Pathology
The “Genomic autopsy” research project
Stillbirth is a devastation that often occurs without adequate explanation. Despite extensive testing that is currently done as part of an autopsy, the cause is unfortunately often not found.
The Paediatric and Reproductive Genetics unit at the Women’s and Children’s Hospital are calling for South Australian families who’s child was stillborn in the third trimester, in the last 10 years, with or without explanation and who agreed to an autopsy, to express interest for participation in this research project.
The study is about using state-of-the-art genetic testing techniques to determine the genetic cause in these situations, in the hope of providing families with answers and advice for the future. Genetic testing is being done in collaboration with Genetics and Molecular Pathology at SA Pathology, the Garvan Institute in New South Wales and The Broad Institute/Harvard Medical School in the U.S. Information collected will be stored in a secure, password protected and encrypted data research database, with access limited to the research team only, with relevant results fed back to families.
For further information please contact:
Associate Professor Christopher Barnett
Head, Paediatric and Reproductive Genetics Unit
Women’s and Children’s Hospital
Gordon, Adrienne FRACP, PhD; Raynes-Greenow, Camille MPH, PhD; Bond, Diana RN; Morris, Jonathan FRANZCOG, PhD; Rawlinson, William FRACP, PhD; Jeffery, Heather FRACP, PhD
OBJECTIVE: To identify potentially modifiable risk factors for late-pregnancy stillbirth.
CONCLUSION: This study suggests that supine sleep position may be an additional risk for late-pregnancy stillbirth in an already compromised fetus. The clinical management of suspected fetal growth restriction should be investigated further as a means of reducing late stillbirth.
Interview with Dr Adrienne Gordon
“Dr Adrienne Gordon, a neonatologist from Sydney’s Royal Prince Alfred Hospital, studied 300 pregnant women from eight hospitals around Australia. She found that women sleeping on their backs in the later stages of pregnancy were six times more likely to have a stillborn baby.”
Laura Anna Wijs, Esti Charlotte de Graaff, Shalem Leemaqz & Gustaaf
OBJECTIVE: To provide an in-depth analysis of all stillbirth causation over a period of 10 years in a busy maternity unit located in a socioeconomically disadvantaged urban area, with an emphasis on overlapping pathology.
CONCLUSION: Overlapping pathology was identified in 43% of stillbirths. Infection, IUGR, and abruption were the most important single cause of stillbirth.
E. C. de Graaff, L. A. Wijs, S. Leemaqz & G. A. Dekker
OBJECTIVE: Several risk factors for stillbirth have been extensively investigated. Some risk factors are more common in socio-economically disadvantaged regions. The aim of this study was to identify risk factors for stillbirth in the Northern suburbs of Adelaide, one of the most socio-economically disadvantaged urban areas in Australia.
CONCLUSION: These Australian data confirm the presence of several potentially modifiable risk
factors for stillbirth, within this socio-economically disadvantaged region. Modifying these risk
factors, in particular obesity, is a big challenge not only for maternity and primary care
providers, but for overall society.
(The economic impacts of stillbirth in Australia, 2016)
Stillbirth Foundation Australia engaged PwC to conduct an economic impact study to identify and estimate the costs associated with stillbirth.